In Control of my Fibro: Symptoms tracker, pacing advice and notebook for Fibromyalgia warriors

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a year ago led to fibromyalgia generally being dealt with by GPs (no further secondary care nor multi-component programmes offered). We think that fibromyalgia may be caused by differences in the way the brain senses signals coming up from the body.

The pain is often affected by our emotion, moods, depression, anxiety and these factors may well make the pain seem worse.Some fibromyalgia patients may also suffer from chronic fatigue syndrome / myalgic encephalomyelitis (CFS / ME). The power of diagnosis lies in its potential to explain things previously puzzling and delineate the path ahead [ 30]. Clair, Ellie and Caroline are the three women behind Tristarr Publishing, the only publishing company dedicated to helping and supporting people with fibromyalgia. However, it remains unclear as to how best to organise health systems to deliver services to optimise patient outcomes. None of the documents provided referred to hypermobility or Ehlers-Danlos syndrome and we therefore considered that The Fibro Guy had not provided evidence in relation to those conditions.

But keeping active is a really important part of the treatment for fibromyalgia and can prevent other health problems.The NHS is still separating mental and physical health where fibromyalgia needs a combined approach.